Fondazione Telethon ETS

FTELE

Telethon Foundation is an Italian non-profit organization that has been supporting bio-medical research on rare and genetic diseases for more than 30 years.

Links

Website Transparency Register Profile

ID: 600735639422-31

Lobbying Activity

Response to Proposal for a Regulation of the European Parliament and Council to foster biotechnology in Europe

11 Jun 2025

Response to Communication from the Commission to the European Parliament, the Council, the European Economic and Social Committee and the Committee of the Regions on the “Strategy for European Life Sciences”

17 Apr 2025

Meeting with Alessandra Moretti (Member of the European Parliament)

24 Jan 2024 · Rare diseases EU policies

Meeting with Brando Benifei (Member of the European Parliament)

17 Jan 2024 · Discussion on initiatives on rare diseases issues

Response to Proposal for a DIRECTIVE OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL on the Union code relating to medicinal products for human use, and repealing Directive 2001/83/EC and Directive 2009/35/EC

8 Nov 2023

Response to Proposal for a REGULATION OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL on fees and charges payable to the European Medicines Agency, amending Regulation (EU) 2017/745 of the European Parliament and of the Council and repealing Council Regulation (EC) No 297/95 and Regulation (EU) 658/2014 of the European Parliament and of the Council

7 Feb 2023