International Patient Organisation for Primary Immunodeficiencies

IPOPI

IPOPI is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency patients worldwide through global collaboration.

Lobbying Activity

Meeting with Ann-Sofie Ronnlund (Cabinet of Commissioner Ekaterina Zaharieva)

21 Nov 2025 · Life sciences

Response to Critical Medicines Act

27 Feb 2025

Meeting with Billy Kelleher (Member of the European Parliament)

9 Sept 2024 · Rare Disease Screening

Meeting with Stella Kyriakides (Commissioner) and

28 Sept 2023 · Meeting of Commissioner Kyriakides with newborn screening associations

Meeting with Margaritis Schinas (Vice-President) and

8 Apr 2021 · Health Union