Skeletal Dysplasias Alliance
SD Alliance
Se trata de una Alianza formada por 8 grupos de 8 países europeos que representan y son punto de encuentro de personas con acondroplasia y displasias esqueléticas.
Lobbying Activity
Meeting with Tomislav Sokol (Member of the European Parliament)
11 Nov 2025 · Health Policy
Meeting with Tilly Metz (Member of the European Parliament)
3 Sept 2024 · Rare diseases
Meeting with Jonás Fernández (Member of the European Parliament)
5 Oct 2023 · Skeletal Dysplasias